| Location | Bromley |
| Age | 6 months |
| Cause of Death | Genetic Condition |
| Date of Birth | 31/12/2007 |
| Date of Death | 24/07/2008 |
| Visitors | 3,006 since 26/09/2008 |
| Creator |
Curtis came into the world on New Years Eve into a room full of anxious doctors and midwives and of
course two very worried parents. He wasn’t breathing at first but after a little encouragement
took his first breath and was then whisked away from us to the Special Care unit at Medway Hospital.
From that very first day he showed such determination and strength of character, he made us very
proud. We were unaware of his problems before he was born, so as the extent of his medical
condition unfolded we were very shocked and our emotions very mixed – having such a beautiful
little boy but knowing that we may not be able to keep him for very long. Medway hospital thought
he had Edwards Syndrome and told us it was a miracle he had survived birth, and that his life
expectancy was realistically no more than a couple of weeks. Curtis of course had other ideas. We
had a Blessing for him at the hospital, Penny (our local vicar) kindly came down and visited us, and
it was a lovely occasion with just close friends and family.
We were told he would never walk or talk and it took a while for us to get used to the idea, but we
accepted it. What was harder to take was that Cutis was unable to swallow, so as I cuddled him and
he naturally searched for food, I was unable to help him - his feeding had to be by a tube through
his nose. Whenever he slept I used to watch his little tongue moving as if he was sucking, he never
lost that instinct in nearly 7 months. While in hospital, at Medway and then when he was moved to
Kings and then Farnborough he had many blood tests and other needles, but he never cried. He took
everything in his stride, everyone said what a brave little boy he was, a little fighter. He would
even open his mouth to allow suction catheters in, and seemed to understand that it would help him
to breathe.
The bond we had was very strong, he knew our voices and calmed when we held him. I stayed with him
in hospital and I am very proud of the way my other boys coped without me at home and grateful to
Robbie and my mum for helping keep everything as normal as possible for them. The boys thought the
world of their little brother and visited often. We were finally allowed to bring him home just
after Easter and I remember being worried that my nursing skills wouldn’t be good enough, but with
practice and help from all the team at the Phoenix Centre we did OK, thank you everyone.
We had some lovely family times, taking Curtis to Pontins in Blackpool and to visit Robbie’s
family in Liverpool. He met all of his uncles and aunties, and it was nice that he met his Grandad
John before he sadly died very suddenly 8 weeks ago.
Wherever I went and whatever I had to do, Curtis would be in my arms. At all the school events at
the end of term, I was proud to show Curtis off and people got used to seeing us around the school,
everyone commenting on his beautiful long eyelashes. It was hard to go back in September without
him in my arms, though he will always be in my heart.
At 6 months Curtis had started to teeth and like any other baby would dribble and drool. He started
to get more knowing and sometimes push the suction catheter away. We would sometimes catch a smile,
when least expected, usually at the sound of his dad’s voice. We could see a future for him,
although different from other children, we would have made sure he didn’t miss out. Sadly though
it wasn’t meant to be and in death as in life Curtis didn’t cause any fuss, he just slipped away
in his sleep. We will always be grateful to him for the time he gave us and although we love all
our children, Curtis will always be special to us.
Hi Curtis fly high and spread all your love to mummy and daddy xxx I will leave you all my love xxx
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Those we love don't go away,
They walk beside us every day,
Unseen, unheard, but always near,
Still loved, still missed and very dear
So sorry for your loss
I too had a son who was stillborn at 18wks 4 days Feb. 13th 2008,from complications of having Trisomy 18 (Edwards Syndrome) he had many complex heart defects including HLHS, PDA DORVSD. He also had only one kidney. I found out he had passed away on the day I found out he had Trisomy 18. I also had a full placental abruption which is what ulimately ended his life. I miss him soo much. I am soo glad that you got to spend time with your precious son, time I wish I could have had. Curtis is such a beautiful and precious angel. I know he is up in heaven with my 2 angel boys having fun, playing, running and healed. Everything our precious babies wouldn't have had the chance to do in life. You can look up my son Kaysons page on here under Kayson Osborne. Thank you so much for sharing your precious angel with me. He is in my heart forever. Just know that you are not alone. I am here for you.
GODS ANGELS
If God did not make Angels, then who would want to die?
How could there be a Heaven in that great place in the sky?
If God did not make Angels, then who could sing and play
And evermore watch over us each moment, every day?
He chooses them so carefully and often they are small,
His babies are most innocent, and some aren't born at all.
These cherubs are a special gift sent down for us to love,
If only for a little while until they're called above.
If you conceived an Angel that was not meant to stay,
Then do not grieve and make it sad, just let it go and play,
For Heaven is a special place where we all wish to go,
Our Angels will be waiting there for all of us, you know,
And when we see their faces and their little golden smile,
We'll know our precious Angels only left for a short while.
We'll cuddle them and smother them with kisses filled with love,
That day we meet our Angels in God's nursery up above.
*********SLEEP TIGHT LITTLE ONE LOVE CLAIR********
(author Dawn Glenton 2000)
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_________..___( ._|_. )___/_________
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__________.-`.______ _, '-.__________
________, '__, '___`-'___`.__ `._______
_______/___/_____X__ ___..___..____
_____, '____/_____o______. .___`.___
___, '_____|______x_____ __|_____`._
__|_____, '|_______o_______|` . _____|
___`.__, '_.-.._____x______/ -._`.__, '__
_________/_`.____o__ __, '__.._______
__.''-._, '______`._:_, '_______`., -''.__
_/_, -._`_______)___(________ '_, -.__..
(_(___`._____, '_____`.______, '___)_)
_.._..____..__, '________`.____/___ /_/__
__`.`._, '_/_____________.._ _`._, ', '____
___`.__.-'_____ _________`-.___, '____
Most people walk in and out of your life.
......oooO.......... ....
.....(....).....Oooo ...
......)../.....(.... )....
.....(_/.......)../. ....
...............(_/.. .....
But only Loved ones leave footprints
in your heart. Good night angel xxxxx
THE CORD!
We are connected, my child and I,
by an invisible cord not seen by the eye.
It’s not like the cord that connects us at birth,
this cord can’t be seen by any on earth.
This cord does its work right from the start,
it binds us together, attached by the heart
I know that it’s there, though no one can see
this invisible cord, from my child to me.
The strength of this cord,
it’s hard to describe,
it can’t be destroyed, it can’t be denied.
It’s stronger than any cord man could create;
it withstands the test, can hold any weight.
And though you are gone and you’re not here with me,
the cord is still there though no one can see.
It pulls at my heart, I am bruised, I am sore,
but this cord is my lifeline as never before.
I’m thankful that God connects us this way,
a mother and child…Death can’t take it away.
xxxxxxxxx
sleep tight little one
xx
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what makes a mother...
I thought of you and closed my eyes
And prayed to God today
I asked "What makes a Mother?"
And I know I heard him say
A Mother has a baby
This we know is true
But, God, can you be a mother
When your baby's not with you?
Yes, you can he replied
With confidence in his voice
I give many women babies
When they leave it is not their choice
Some I send for a lifetime
And others for the day
And some I send to feel your womb
But there's no need to stay.
I just don't understand this God
I want my baby here
He took a breath
and cleared his throat
And then I saw a tear
I wish I could show you
What your child is doing today
If you could see your child smile
With other children and say
"We go to earth to learn our lessons
of love and life and fear
My mummy loved me so much
I got to come straight here
I feel so lucky to have a Mom who had so much love for me
I learned my lessons very quickly
My Mummy set me free.
I miss my Mummy oh so much
But I visit her each day
When she goes to sleep
On her pillows where I lay
I stroke her hair and kiss her cheek
And whisper in her ear
Mummy don't be sad today
I'm your baby and I am here"
So you see my dear sweet one
Your children are okay
Your babies are here in My home
And this is where they'll stay
They'll wait for you with Me
Until your lessons are through
And on the day you come home
they'll be at the gates for you
So now you see
What makes a Mother
It's the feeling in your heart
It's the love you had so much of
Right from the very start
Though some on earth
May not realize
Until their time is done
Remember all the love you have
And know that you are
A Special Mum
What a beautiful little boy- angels always are. Sweet dreams curtis Xx
⺌☆⺌ Shine bright little man
Love to you and your family xX
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