| Location | Bromley |
| Age | 6 months |
| Cause of Death | Genetic Condition |
| Date of Birth | 31/12/2007 |
| Date of Death | 24/07/2008 |
| Visitors | 3,006 since 26/09/2008 |
| Creator |
Curtis came into the world on New Years Eve into a room full of anxious doctors and midwives and of
course two very worried parents. He wasn’t breathing at first but after a little encouragement
took his first breath and was then whisked away from us to the Special Care unit at Medway Hospital.
From that very first day he showed such determination and strength of character, he made us very
proud. We were unaware of his problems before he was born, so as the extent of his medical
condition unfolded we were very shocked and our emotions very mixed – having such a beautiful
little boy but knowing that we may not be able to keep him for very long. Medway hospital thought
he had Edwards Syndrome and told us it was a miracle he had survived birth, and that his life
expectancy was realistically no more than a couple of weeks. Curtis of course had other ideas. We
had a Blessing for him at the hospital, Penny (our local vicar) kindly came down and visited us, and
it was a lovely occasion with just close friends and family.
We were told he would never walk or talk and it took a while for us to get used to the idea, but we
accepted it. What was harder to take was that Cutis was unable to swallow, so as I cuddled him and
he naturally searched for food, I was unable to help him - his feeding had to be by a tube through
his nose. Whenever he slept I used to watch his little tongue moving as if he was sucking, he never
lost that instinct in nearly 7 months. While in hospital, at Medway and then when he was moved to
Kings and then Farnborough he had many blood tests and other needles, but he never cried. He took
everything in his stride, everyone said what a brave little boy he was, a little fighter. He would
even open his mouth to allow suction catheters in, and seemed to understand that it would help him
to breathe.
The bond we had was very strong, he knew our voices and calmed when we held him. I stayed with him
in hospital and I am very proud of the way my other boys coped without me at home and grateful to
Robbie and my mum for helping keep everything as normal as possible for them. The boys thought the
world of their little brother and visited often. We were finally allowed to bring him home just
after Easter and I remember being worried that my nursing skills wouldn’t be good enough, but with
practice and help from all the team at the Phoenix Centre we did OK, thank you everyone.
We had some lovely family times, taking Curtis to Pontins in Blackpool and to visit Robbie’s
family in Liverpool. He met all of his uncles and aunties, and it was nice that he met his Grandad
John before he sadly died very suddenly 8 weeks ago.
Wherever I went and whatever I had to do, Curtis would be in my arms. At all the school events at
the end of term, I was proud to show Curtis off and people got used to seeing us around the school,
everyone commenting on his beautiful long eyelashes. It was hard to go back in September without
him in my arms, though he will always be in my heart.
At 6 months Curtis had started to teeth and like any other baby would dribble and drool. He started
to get more knowing and sometimes push the suction catheter away. We would sometimes catch a smile,
when least expected, usually at the sound of his dad’s voice. We could see a future for him,
although different from other children, we would have made sure he didn’t miss out. Sadly though
it wasn’t meant to be and in death as in life Curtis didn’t cause any fuss, he just slipped away
in his sleep. We will always be grateful to him for the time he gave us and although we love all
our children, Curtis will always be special to us.
thinking of you xx
♥A Note from heaven♥
♥Don't worry for me loved one, i am safe up here♥
♥I have no pain no more, but you have it is clear♥
♥I know your heart is broken, for me you must not weep♥
♥I am with you always, but in the after life i sleep♥
♥In the day light i am with you, i bring the morning sun♥
♥To melt away your sadness, until the dark night comes♥
♥At this time i am with you also, shining o so bright♥
♥I am the brightest star you see in the sky each and every night♥
♥So don't worry for me loved one, in life i loved you so♥
♥And i am oh so sorry that it was my time to go
♥I love you still and always will, we really did not part♥
♥my memories are always with you deep inside your heart♥ xx
xX Please pass this on to remember our little ones Xx
------------O------- ----
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---------OOOOO------ ----
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---------OOOOO------ ---------
----------OOOO------ ---------
-----------OOO------ -----------
------------OO------ --------------- WEDNESDAY
---------OOOOOO----- ----------
---------OOOOOO----- -----------15TH
---------OOOOOO----- ----- ----
---------OOOOOO----- ----------- OCTOBER
---------OOOOOO----- ---------
---------OOOOOO----- -------------IS
---------OOOOOO----- --------
---------OOOOOO----- -------- PREGNANCY
---------OOOOOO----- -----
---------OOOOOO----- --- --- AND
---------OOOOOO----- -----
---------OOOOOO----- ---------- INFANT
---------OOOOOO----- --------
---------OOOOOO----- -------LOSS
---------OOOOOO----- ---------
---------OOOOOO----- ----------REMEMBERENCE
---------OOOOOO----- ----------
---------OOOOOO----- --------DAY
Take a moment of your day
To maybe sit and in your mind
Think of all the precious babies
Yours, theirs and mine
Those whose short lives were over
Before they had really ever begun
Those precious little bundles
Who have made us all a Mum
Their tiny lives have touched us all
And what I want to say
They have brought us all together
Each and every day
The babies whose beautiful faces
In our minds forever will be
Whose names are etched within our hearts
For anyone, the whole world to see
The babies who touched our lives
Who we think of through our tears
I hope in time we will be able to smile
When we remember them through the years
So this week while we remember
All our babies who had to go
We shall show the world we are united
And how we love and miss them so
XXXX
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Good night angel xx
FOR MY FRIEND NATALIE XX
Special Friend~~
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FROM JULIE(RITA HORNE)DAUGHTER
WITH LOVE FROM JULIE(RITA HORNE)DAUGHTER
Hold On...............
Life is too short to wake up with regret
So love the people who treat you right
Forget about the ones who dont belive
Everything happens for a reason
If you get a second chance grab it with both hands
If it changes your life let it
No one said life would be easy
They just promised it would be worth it
Send this to a special friend
I just did.
I know I am still with you
in your prayers, your thoughts, your heart
And though you cannot see me,
I will always be a part
of life's sweet celebrations
in those times when you reflect
on how, though things are different,
through our love, we still connect.
We'll see each other someday
when our spirits all are free,
until then, I am with you
because you remember me.
xxxxxxx
Darling Curtis, you are always on my mind and I am thinking of you constantly. Give Paul and Grandad lots of cuddles. All my love, Nan xxx
TO MY FRIEND
X SENDING YOU SOME LOVE X
GOD,
*.*.*.OPENED
* ...*.*. THE WINDOWS
* * .* *.*.*.* OF HEAVEN.
.*) .*) *.*.*LOOKED AT ME
. (... *.*.*.**.*.*.*AND ASKED,
..*(...) .*.*.*.*.* **.*. *WHAT IS YOUR
* ....(...) * . * . * .* *PRAYER
* .*.. *....* (...) * .*FOR
.. *..(...). *....* .*TODAY?
.* ... *.... * *. * . * .**I
. * . * . . * . *.*. * . **ANSWERED:
__00000___00000 *.*. * .* .*GOD
_0000000_0000000. * . * .*TAKE
_0000 OOOO 00000. * . * .*CARE
__0000000000000 * . ** .*OF THE
___00000000000 * . *. * . * .*PERSON
_____0000000 * . *. * . ** *.*THAT
_______000 * . *. * * * .*.*IS
________0* . * .. ** .. * .*.*READING
. * .. ** .. * . * . * .* . *.*THIS
. * . (.. *** /) * .*.*MESSAGE
* . * ( ..(_)/ ) * * .BECAUSE
* . * (_ /|.. _) . **.* THIS PERSON IS
* . * . /___.. * . .* .*SO
. * * . * . * *SPECIAL xxx
FROM JULIE(RITA HORNE)DAUGHTER
Darling Curtis,
If tears could build a stairway,
And memories were a lane,
I would walk right up to Heaven
To bring you home again.
No farewell's were spoken,
No time for goodbye,
You were gone before I knew it,
And only God knows why.
My heart still aches in sadness,
And secret tears will flow,
What it meant to me to lose you,
No one will ever know.
I am so sorry
First of all i am so very sorry for your trajic loss of you precious son. I have read your page and cannot believe how brave you have been. What a lucky little boy to have a wonderful mum like you. Your little boy Curtis is absolutely beautiful, far too precious for this world. God only takes the best. You must be so proud of him. What a fight he put up, such a strong little man. Spread you wings Curtis and fly high with my Henry. Take care and watch over your mummy xxxxx
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