Curtis John Hayes

2007 - 2008
LocationBromley
Age6 months
Cause of DeathGenetic Condition
Date of Birth31/12/2007
Date of Death24/07/2008
Visitors2,981 since 26/09/2008
Creator

Curtis came into the world on New Years Eve into a room full of anxious doctors and midwives and of
course two very worried parents. He wasn’t breathing at first but after a little encouragement
took his first breath and was then whisked away from us to the Special Care unit at Medway Hospital.
From that very first day he showed such determination and strength of character, he made us very
proud. We were unaware of his problems before he was born, so as the extent of his medical
condition unfolded we were very shocked and our emotions very mixed – having such a beautiful
little boy but knowing that we may not be able to keep him for very long. Medway hospital thought
he had Edwards Syndrome and told us it was a miracle he had survived birth, and that his life
expectancy was realistically no more than a couple of weeks. Curtis of course had other ideas. We
had a Blessing for him at the hospital, Penny (our local vicar) kindly came down and visited us, and
it was a lovely occasion with just close friends and family.

We were told he would never walk or talk and it took a while for us to get used to the idea, but we
accepted it. What was harder to take was that Cutis was unable to swallow, so as I cuddled him and
he naturally searched for food, I was unable to help him - his feeding had to be by a tube through
his nose. Whenever he slept I used to watch his little tongue moving as if he was sucking, he never
lost that instinct in nearly 7 months. While in hospital, at Medway and then when he was moved to
Kings and then Farnborough he had many blood tests and other needles, but he never cried. He took
everything in his stride, everyone said what a brave little boy he was, a little fighter. He would
even open his mouth to allow suction catheters in, and seemed to understand that it would help him
to breathe.

The bond we had was very strong, he knew our voices and calmed when we held him. I stayed with him
in hospital and I am very proud of the way my other boys coped without me at home and grateful to
Robbie and my mum for helping keep everything as normal as possible for them. The boys thought the
world of their little brother and visited often. We were finally allowed to bring him home just
after Easter and I remember being worried that my nursing skills wouldn’t be good enough, but with
practice and help from all the team at the Phoenix Centre we did OK, thank you everyone.

We had some lovely family times, taking Curtis to Pontins in Blackpool and to visit Robbie’s
family in Liverpool. He met all of his uncles and aunties, and it was nice that he met his Grandad
John before he sadly died very suddenly 8 weeks ago.

Wherever I went and whatever I had to do, Curtis would be in my arms. At all the school events at
the end of term, I was proud to show Curtis off and people got used to seeing us around the school,
everyone commenting on his beautiful long eyelashes. It was hard to go back in September without
him in my arms, though he will always be in my heart.

At 6 months Curtis had started to teeth and like any other baby would dribble and drool. He started
to get more knowing and sometimes push the suction catheter away. We would sometimes catch a smile,
when least expected, usually at the sound of his dad’s voice. We could see a future for him,
although different from other children, we would have made sure he didn’t miss out. Sadly though
it wasn’t meant to be and in death as in life Curtis didn’t cause any fuss, he just slipped away
in his sleep. We will always be grateful to him for the time he gave us and although we love all
our children, Curtis will always be special to us.


Recent Gifts

Recent Tributes


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To a gorgeous wee boy...

They say there is a reason... they say that time will heal
But neither time or reason will change the way we feel
For no one knows the heart ache thats lies behind our smiles
Nobody knows how many times we have broken down and cried
We want to tell you something so there is not any doubt
You are so wonderful to think of... but so very hard to be without

Love from Sharon, Lachlan's mum x

Sharon Lachlans Mum July 24, 2009

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Bon Nxxx December 31, 2008

Recipe for Christmas All Year Long

♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫


Take a heap of child-like wonder
That opens up our eyes
To the unexpected gifts in life—
Each day a sweet surprise.
Mix in fond appreciation
For the people whom we know;
Like festive Christmas candles,
Each one has a special glow.
Add some giggles and some laughter,
A dash of Christmas food,
(Amazing how a piece of pie
Improves our attitude!)
Stir it all with human kindness;
Wrap it up in love and peace,
Decorate with optimism, and
Our joy will never cease.
If we use this healthy recipe,
We know we will remember
To be in the Christmas spirit,
Even when it's not December.

♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫


As Christmas time approaches
We miss you more and more
Memories of past Yule times
We always will adore
We still hang the decorations
Put the lights upon the tree
We hang the cards upon the wall
This one's for you, you see
Even though you are not here
You're always in our hearts
So we remember you this Christmas
While we're temporarily apart.

♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫



I've set your place at the table
Your presents wrapped under the tree
Christmas carols playing
But you're not here with me
It seems harder this time of year
I miss you so much more
The only thing that gets me through
Are the memories of before
So here's a card just for you
To show how much I care
I know your waiting with the angels
One day I'll see you there.


♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫♥♫

Thoughts Today Memories Forever
Angela(Christopher-John Rowe)Mum

Marie-Angela Rowe December 24, 2008

A candle to remember,
May it burn ever so bright
As we look to the heavens
On this very night.
Beyond the stars,
Your dear one soars
Embraced by there Savior
On heaven's shores.
As the angels protect them
And sing there sweet name
We honor there life
With the glow of this flame.
So we light this candle
For our loved ones today
As a symbol of our love
And there eternal life.

with all our love
mell,paul family.

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.....{*.\.....(*~*~*).../}
....{.~.*\....////^^\../~}
....{*....\..(((/.6.6./.*}
....{..*.~.\.)))c..=.)*..}
.....{*...*.////'_/~`.~.}
......{~.*.((((.`.`\.*}' ..::�
.......`{.~.)))`\.\))_.-:*:-
..........`{.(()..`\_.-'`.`:'
............`)/.`..|
.............(....\'
..............\....\
.........._ .__\...|
........|` `'...``C;
........|./``-../../
........`'......|./
................/.`-._
................`-----

Mell Campbell November 18, 2008

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Mell Campbell November 11, 2008

IN THE ARMS OF THE ANGELS XX
Most people walk in and out of your life.

......oooO.......... ....
.....(....).....Oooo ...
......)../.....(.... )....
.....(_/.......)../. ....
...............(_/.. .....
But only loved ones leave footprints in our hearts xxxx

Anji C November 10, 2008

As you release this butterfly in honour of me,
know that I'm with you and will always be.
Hold a hand, say a prayer, close your eyes and see me there.
Although you may feel a bit torn apart,
please know that I'll be forever in your heart.

Now fly away butterfly as high as you can go,
I'm right there with you more than you know.
xxxxx

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Anji C November 8, 2008

*• ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥ •*

You still live on in the hearts and minds,
Of the loving family you left behind.

*• ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥ •*

A garden of beautiful memories,
Sprayed with a million tears.

*• ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥ •*

Beautiful memories are treasured forever,


*• ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥ •*

Loved with a love beyond all feeling,
Missed with a grief beyond all tears.

*• ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥ •*

Mell Campbell November 5, 2008

May you always walk in sunshine and God’s love around you flow, for the happiness you gave us, no one will ever know, it broke our hearts to lose you, but you did not go alone, a part of us went with you, the day God called you home. A million times we’ve needed you. A million times we’ve cried. If love could only have saved you. You never would have died. xxxxxxx

Anji C November 3, 2008

Sad was the parting, no one can tell,
So sudden on earth the sorrow fell;
The blow was hard, the shock severe,
To part with the one's we love so dear.
Dearer still as years depart
Their memory lives on within our heart.

Mell Campbell November 2, 2008
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